PANS/PANDAS General Information
In the video above, a parent shares her family’s journey with PANS/PANDAS.
In addition to the video above, you can read more about PANS/PANDAS here.
At SEE Alternatives Pediatrics, we bring you hope and healing. We not only acknowledge that legitimacy of the diagnosis, but we go further to look for the root cause of this syndrome. We evaluate all components of a child’s health and well-being to help find the source of the symptoms. We look for immune imbalances and gut imbalances that may lead to over-reactivity of the immune system. We utilize a variety of modalities to help a child heal. We start with a comprehensive functional evaluation, and generally draw labs to further support valuation of the root cause. We may also recommend other functional testing, including stool testing and organic acid testing (urine test).
How to Get Started with Your Child’s Evaluation
We know the stress you are experiencing and that you are desperate for help. We want to serve you in the most efficient way possible for you, your child and our staff and providers.
To start this process, please complete the Comprehensive Evaluation Form and email it to our office at info@seealternatives.com or fax it to our office at 843-920-0001. We understand this form can be a bit daunting, but it does provide us with a great deal of information to make your first appointment as concise as possible. Please take your time and provide as much information as possible. You may also send us copies of additional testing and labwork already performed.
Once we have received the evaluation form, we will contact you directly to schedule an appointment. Most often we are able to get you scheduled within two weeks of you submitting your form – depending on provider and family availability.
What to expect at your office visit
Our comprehensive evaluation appointments, including those for PANS/PANDAS, are generally scheduled for 60 minutes. For a majority of these visits, we draw labs in office. If we do not feel like we will be successful, we may send you to MUSC for a lab draw (they have great phlebotomists for children!).
We may also test your child for strep (and other infections) using a throat, nose, and/or perianal swab. We also do an extensive physical exam.
Please bring something your child likes to do and something that provides comfort for your child when in distress if at all possible.
Additional Resources regarding PANS/PANDAS
The Foundation for Children with Neuroimmune Disorders – this page has information for parents and providers.
- They have great recorded webinars just for families.
- They have a great facebook page.
- Their main website has great information as well.
PANDAS Physician Network (PPN) This website is designed to increase awareness and treatment understanding for healthcare providers, but can also be a great learning tool for parents as well.
Caregiver Coping with PANS/PANDAS – Make sure to follow the instructions for how to access the webinar for FREE!
